An unwelcome, Olympic inspiration

August 13, 2012

Thank God, the Olympics are over. All the running and jumping and swimming and diving – it makes me want to run and jump and swim and dive and that is just incredibly frustrating for a woman with MCTD who used to be active.

I used to play basketball and watching the Opals and some of the other teams, I got all teary, remembering how much I used to love jumping and slapping a shot away from someone shooting. I didn’t care that much for shooting hoops myself, but as long as I could get in someone’s face and frustrate the hell out of them by stopping them from doing anything….well, that was an awesome feeling.

What’s worse is, although I really miss basketball, now I have started craving sports I’ve never played. I REALLY want to play beach volleyball. And not just because I want to look like those women playing beach volleyball, but because it’s a whole lot of jumping and diving and hand/eye coordination. I love that.

Then, I also really want to play tennis. Oh my gosh – can you IMAGINE how badly my body would punish me for swinging my arm around like that for a game of tennis? But I just keep thinking how social it is and how I wouldn’t have to meet my friends at the pub if only I could play more sport. And, you know what? I don’t even think tennis is an Olympic sport!

When you start dwelling on this sort of thing, you can go a little bit too far. I’ve found myself over the last few weeks not only feeling sorry for myself that I can’t play sport, but having that shocking realisation that I will never make it to the Olympics! Never!

Now, I can’t say I’ve ever had any inkling of going to the Olympics or even playing sport professionally but its just another thing I can blame my MCTD on.

People will read my blog and go ‘Did you hear about that poor girl who would have been an Olympian in basketball, volleyball and tennis – if she wasn’t struck down by MCTD. Very sad.’

I know one thing….I could win Olympic Gold in dramatics. 😉


9 Responses to “An unwelcome, Olympic inspiration”

  1. Shannon said

    I know what you mean, but I’m sure you could get involved in some sports. I read your last blog entry about traveling to a different country and was amazed that you did that! I can’t even fathom doing something like that, and the prospect of even taking a trip somewhere worries me because of my MCTD. However, I am extremely active and am not daunted by the thought of participating in a sport, and have even considered taking up tennis again. I’m sure you could do it, you are much much stronger than you know. At least from where I’m sitting, on the outside looking into your life through your posts : )

    • Thanks Shannon. I just really dont know how my joints and muscles would take swinging my arms around or jumping and running. I can feel the fever coming on just thinking about it. With travel, you can generally control the amount of physical activity you’re doing. Still, I’ll work my way up to a sport.

      • Vonda said

        There is hope after all.
        I remember as a kid watching the olympic gymnists thinking, I can do that. I would lay on the floor and stretch my legs and body in all kinds of positions thinking I had special powers, when all I was doing was yoga positions.
        When I got older and got sick, I couldn’t understand how this athletic vibrant body could go from jogging 5miles a day to a wheel chair, barely able to move.
        The doctors put me on 15 different meds and told me there was nothing else they could do. All they did was take my money. I wasn’t getting better. Just masking my illness and never addressing the real problems, never healing.
        Then a friend of mine with the same problem, died from complications due to medications. I promised her and myself that wasn’t going to be me.
        So I decided to take my life back. With the help of my doctor weening off my medications and using alternative methods, major change in diet and supplements to heal my body.
        Today, I am back to jogging 5miles a day, weight training and lost the 100lbs prednisone made me gain. All with no pain. It took me 2 yrs, but i’m back.
        So, I am here to tell all with MCTD or with any degenerative disease, that there is hope.


  2. Vonda said

    Don’t give up hope.
    I was diagnosed with MCTD 2005. After 5 years of listening to the doctors. Suffering from side affects from medications, and gaining 100lbs I had enough.
    I too used to be active. I exercised everyday. Ran at least 5 miles daily, lifted weights and ate like an athlete. Then life happened. My mother died, my husband cheated on me and I lost all interest in life. It caught up with me. Drinking, smoking and suddenly, i couldn’t breath. Then I had slipped disks in my back, so i couldn’t walk. High blood pressure, liver enzymes climbing with all the 15 different meds, kidney and skin issue, COPD, IBS,, I had a list to print for the professionals.
    Now I am jogging 30mins a day. still lifting weights and lost 100lbs. More importantly, functioning well enough to get 2 life insurance policies while prescription free.
    I took control over my body. Changed my life style. Chose alternative methods.
    Studying to be a nutrition consultant and herbalist. Preparing to run a marathon on day.

    Don’t give up. There is hope.

  3. Wow… I just want to say that you are all very inspiring. I am 12 years old and feel much older than I should. I have MCTD (diagnosed a week ago) and also have slipped disks (2). it’s a sad day when your physical therapist tells you you are too weak to support yourself, especially since I cant play tennis or volleyball anymore and can only sit on the bleachers doing my homework during PE. I have no idea what to expect but your experiences help me. You all prove that there is still hope and strength. thank you so much!

    • Hi Jennifer, thanks for your message. I’m sorry to hear about your diagnosis. It’s an up and down battle but now four years on I play tennis when I feel good and go to the gym regularly. Never thought that would happen. Stay positive and goodluck x

      • Thanks I just feel scared because I don’t know what to expect and I also heard that a quarter of the people with this disease die. I also worry about school because I have always been a straight- A student and I feel that I will have to miss a lot of school. but I try to stay positive and in just about a month I’m going to do volleyball intramurals and see how that plays off.

      • Hi Jennifer. To be honest I have never heard that statistic and mostly people with MCTD will live long happy lives. I would speak to your rheumy about that and also about what your illness is affecting in your body. I am lucky as my internal organs aren’t affected. Honestly, don’t look at this as a life sentence. You will have ups and downs, you will have times when you become used to this way of life and you can’t remember how it was before and then you’ll have days where you sob your heart out about how unfair life is. You’re allowed to have those days. Just try not to let it be all consuming.
        I understand about being worried about your marks, while I didnt get this until after school, I was worried about my career and taking time off but once they got my meds right, I rarely take time off work. Maybe 3 days a year for MCTD related pain and usually that’s because I’m so fatigued and upset that I can’t function at work and need a recovery day.

        Anyway, I’m rambling. Best of luck.

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