Surviving camping with MCTD

January 8, 2012

Happy New Year!! It certainly was a happy start to 2012 for me as I conquered one of my fears caused by my Mixed Connective Tissue Disease – I went camping!

For months I had played with the idea of attending a fabulous music festival in Tasmania, Australia called Falls Festival, but I was hesitant as it meant camping for a few days. As any MCTD sufferer would know, this is a scary thought as sleeping on the ground could prove disasterous and cause incredible pain that would ruin my trip.

Luckily for me, my flatmate, who encouraged me to go, had an inside contact. Her brother manages the site of the festival and was able to offer me a tent and a swag. For non- Aussies, a swag is a canvas bedroll with a mattress in it that you can slip your sleeping bag in and not get attacked by bugs/snakes etc. My swag was insanely comfortable….as comfy as a regular bed and I was snug as a bug.

Also, with getting the swag and tent when I got there I didn’t need to struggle with carrying that weight on the plane and shuttle….so it was win win.

Realistically, I must be in a pretty good place health wise to be able to do that – but I’m pretty thrilled and now dreaming about other things I’d like to do.

However, I think I still might be a way off returning to basketball or taking up volleyball and tennis.

Still…upon returning home, to celebrate….I lowered my 4 mg of prednisolone to 3 mg. I’m feeling it but pushing through it because I want to be off this drug by end of April if possible.

Here’s to a happy, healthy, pain-free 2012.


3 Responses to “Surviving camping with MCTD”

  1. Rebecca said

    Excellent news, Nomes. I’m very happy for you. Lots of love. xxx

  2. Bev said

    WOOOHOOO!! well done you!! keep on keeping on, and, your resolutions will come true!! :o) xox.

  3. Dianne Connell said

    no doubt about you. you have so much determination and a positive attitude and with that, you will keep achieving and keep on dreaming.
    You’re an inspiration to everyone.

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